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Manage dying

Managing dying involves:

  • recognising the signs of approaching death
  • focusing on comfort
  • following legal procedures, and
  • supporting both the dying person and their family.

During this time, it is important to focus on keeping the person comfortable and maintaining their dignity.

What to look out for

  • Final days of life

  • Final hours to days of life

  • Dementia and dying

There are common signs to look out for when someone is in their final days of life. These include:
  • rapid decline in health
  • needing more frequent help
  • becoming semi-conscious or unconscious
  • difficulty swallowing
  • refusing food, drinks, or medicine
  • changes in breathing patterns.
In the final hours to days of life, several specific signs may appear, such as:
  • changes in breathing
  • drowsiness
  • restlessness
  • reduced urine output.
  • Common causes of death for people with dementia include pneumonia, cardiovascular disease, and sudden unexplained deaths.
  • Recognising when someone with advanced dementia is dying can be difficult.
  • If common issues such as difficulty swallowing or refusing food get much worse over a few weeks or days, it might mean the person is dying.

Ensuring good end of life care

Good end of life care should meet the person's physical, psychological, spiritual, and social needs. Managing symptoms like pain, anxiety, nausea, and breathing problems is important to help the person remain comfortable. Tools like the Symptom Assessment Scale can help identify and manage symptoms. Some long-term treatments that do not help with comfort, like some blood pressure medicines, may be stopped.

In residential aged care, services may commence an end of life care pathway. This will help ensure comprehensive care for the person at the end of life. The goal is to ensure a 'good death' with dignity, pain relief, and respect for the person's wishes about where and how they die.

After the person has died

After death, practical tasks need to be done. These include verifying the death, completing legal paperwork, and supporting the family. Usually, a nurse or doctor will declare the person dead, and a general practitioner (GP) will certify the death. Sometimes, deaths need to be reported to a coroner.

Find out more

  • ELDAC Toolkit videos
  • palliAGED
  • ELDAC Toolkits