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Our Care Model
Understanding palliative care
Understanding the Standards
Advance Care Planning
Recognise End of Life
Assess Palliative Care Needs
Provide Palliative Care
Work Together
Respond to Deterioration
Manage Dying
Bereavement
About you
I am a care worker
I am a nurse
I am a GP or nurse practitioner
I am an allied health professional
I am an educator
I am a service manager
I am a family member or caregiver
Our Toolkits
Primary Care
Clinical Action
Advance Care Planning
Recognise End of Life
Assess Palliative Care Needs
Provide Palliative Care
Understand Your Responsibilities
Manage Symptoms
Serious Complications and Emergencies
Manage Medications
Procedures and Investigations
Diverse Settings
Diverse Population Groups
Syringe Drivers
Information and Resources
Work Together
Respond to Deterioration
Manage Dying
Bereavement
Business and Practice Management
Funding Streams
Medicare Benefits Scheme
General Practice in Aged Care Incentive
MyMedicare
Digital Tools
My Health Record
HealthPathways
ELDAC Digital Dashboard
Older Person, Family and Carer Support
Information and Resources
Feedback Mechanisms
Caring for Diverse Populations
Team Support
Organisational Support
Continuing Professional Development
For Nurses
For GPs
For Practice Managers
Home Care
Clinical Care
Advance Care Planning
Recognise End of Life
Assess Palliative Care Needs
Provide Palliative Care
Work Together
Respond to Deterioration
Manage Dying
Bereavement
References
Education and Learning
Personal Learning Assessment
Online Training
Educator Resources
Other Ways to Gain Experience
Resources
Advance Care Planning
Palliative Care
Self-Care
Bereavement
Useful Links
Organisational Support
Support Systems
Quality Improvement
Standards and Funding
Work Together
Diverse Populations
Supporting Inclusive End of Life Care Companion Guides
Residential Aged Care
Clinical Care
Advance Care Planning
Recognise End of Life
Assess Palliative Care Needs
Provide Palliative Care
Work Together
Respond to Deterioration
Manage Dying
Bereavement
References
Education and Learning
Personal Learning Assessment
Online Training
Educator Resources
Other Ways to Gain Experience
Resources
Advance Care Planning
Palliative Care
Self-Care
Bereavement
Useful Links
Organisational Support
Support Systems
Quality Improvement
Standards and Funding
Work Together
Diverse Populations
Supporting Inclusive End of Life Care Companion Guides
End of Life Law
Overview of End of Life Law in Australia
FAQs
State and Territory End of Life Law
Capacity and Consent to Medical Treatment
Factsheet
Mythbusters
Case Study
Advance Care Directives
Factsheet
Mythbusters
Case Study
Resources
Substitute Decision-Making
Factsheet
Mythbusters
Case Study
Withholding and Withdrawing Life-Sustaining Medical Treatment
Factsheet
Mythbusters
Case Study
Legal Protection for Administering Pain and Symptom Relief
Factsheet
Mythbusters
Case Study
Resources
Futile or Non-Beneficial Treatment
Factsheet
Mythbusters
Case Study
Emergency Medical Treatment
Factsheet
Mythbusters
Case Study
Resources
Managing Disputes about Medical Treatment Decision-Making
Factsheet
Mythbusters
Case Study
Resources
Voluntary Assisted Dying
Overview
Factsheets
FAQs
Resources
Linkages
Why a Toolkit on Linkages
Plan – Identifying and Preparing
Do – Implementing
Check – Assessing and Revising
Act – Sustaining
References
Dementia
Clinical Care
Advance Care Planning
Recognise End of Life
Assess Palliative Care Needs
Provide Palliative Care
Work Together
Respond to Deterioration
Manage Dying
Bereavement
References
Education and Learning
Your Learning Needs
Online Training
Other Ways to Gain Experience
Resources
Advance Care Planning
Palliative Care
Useful Links
Allied Health
Why an Allied Health Toolkit
End of Life Care in Aged Care
Practising in Aged Care
Allied Health Team
Referral Pathways
Funding Allied Health Services
Supporting older adults with disability funding
Telehealth
Allied Health Regulatory Bodies
Guidance and Research
Discipline specific evidence
Useful Websites
Hot Topics
Hot Topic 1 - EDAR
Hot Topic 2 - VAD
Hot Topic 3
Hot Topic 4
Managing Risk
Principles of Risk Management
Nutrition and Hydration
Overview
Personal Preferences
Ongoing Assessment
Support the Person
The Last Days of Life
Good Communication
Medication Management
Overview
Personal Preferences
Medication Needs, Goals and Preferences
Changes in Symptoms
Managing Pain at End of Life
Good Communication
Transfers
Overview
Personal Preferences
Unintended and Unnecessary Transfers
Planning, Risk Assessment and Communication
Continuity of Care Between Settings
Toolkit Educational Videos
Service Development
Linkages Program
Case Stories
Linkage Strategies
Participating Sites
QLD
NSW
ACT
VIC
TAS
SA
NT
WA
PACE Aged Care App
COVID-19
Clinical Assessment and Practice Tools
ELDAC Education
Podcast series
Our products
Digital Dashboard
Case stories
Getting started with the Digital Dashboard
Dashboard Publication
Our diversity
Aboriginal and Torres Strait Islander Peoples
Care Leavers
Carers
Culturally and Linguistically Diverse
Financially or Socially Disadvantaged
Homeless
Lesbian, Gay, Bisexual, Transgender and Intersex
Rural and Remote
Spirituality and Faith
Veterans
Home Care App
Home care search filter
My Care Matters
ProSeek
Self-care room
Raise your understanding
Grab and grow
Pause and reflect
Time to plan
Cope with death and dying
For organisations
Explore resources
About the Self-Care Room
Talking with families
Join Our Webinars
About us
Our team
Common terms
Abbreviations
Publications and Presentations
News
Blogs
Download resources
Order print resources
X
Our Care Model
Understanding palliative care
Understanding the Standards
Advance Care Planning
Recognise End of Life
Assess Palliative Care Needs
Provide Palliative Care
Work Together
Respond to Deterioration
Manage Dying
Bereavement
About you
I am a care worker
I am a nurse
I am a GP or nurse practitioner
I am an allied health professional
I am an educator
I am a service manager
I am a family member or caregiver
Our Toolkits
Primary Care
Clinical Action
Advance Care Planning
Recognise End of Life
Assess Palliative Care Needs
Provide Palliative Care
Understand Your Responsibilities
Manage Symptoms
Serious Complications and Emergencies
Manage Medications
Procedures and Investigations
Diverse Settings
Diverse Population Groups
Syringe Drivers
Information and Resources
Work Together
Respond to Deterioration
Manage Dying
Bereavement
Business and Practice Management
Funding Streams
Medicare Benefits Scheme
General Practice in Aged Care Incentive
MyMedicare
Digital Tools
My Health Record
HealthPathways
ELDAC Digital Dashboard
Older Person, Family and Carer Support
Information and Resources
Feedback Mechanisms
Caring for Diverse Populations
Team Support
Organisational Support
Continuing Professional Development
For Nurses
For GPs
For Practice Managers
Home Care
Clinical Care
Advance Care Planning
Recognise End of Life
Assess Palliative Care Needs
Provide Palliative Care
Work Together
Respond to Deterioration
Manage Dying
Bereavement
References
Education and Learning
Personal Learning Assessment
Online Training
Educator Resources
Other Ways to Gain Experience
Resources
Advance Care Planning
Palliative Care
Self-Care
Bereavement
Useful Links
Organisational Support
Support Systems
Quality Improvement
Standards and Funding
Work Together
Diverse Populations
Supporting Inclusive End of Life Care Companion Guides
Residential Aged Care
Clinical Care
Advance Care Planning
Recognise End of Life
Assess Palliative Care Needs
Provide Palliative Care
Work Together
Respond to Deterioration
Manage Dying
Bereavement
References
Education and Learning
Personal Learning Assessment
Online Training
Educator Resources
Other Ways to Gain Experience
Resources
Advance Care Planning
Palliative Care
Self-Care
Bereavement
Useful Links
Organisational Support
Support Systems
Quality Improvement
Standards and Funding
Work Together
Diverse Populations
Supporting Inclusive End of Life Care Companion Guides
End of Life Law
Overview of End of Life Law in Australia
FAQs
State and Territory End of Life Law
Capacity and Consent to Medical Treatment
Factsheet
Mythbusters
Case Study
Advance Care Directives
Factsheet
Mythbusters
Case Study
Resources
Substitute Decision-Making
Factsheet
Mythbusters
Case Study
Withholding and Withdrawing Life-Sustaining Medical Treatment
Factsheet
Mythbusters
Case Study
Legal Protection for Administering Pain and Symptom Relief
Factsheet
Mythbusters
Case Study
Resources
Futile or Non-Beneficial Treatment
Factsheet
Mythbusters
Case Study
Emergency Medical Treatment
Factsheet
Mythbusters
Case Study
Resources
Managing Disputes about Medical Treatment Decision-Making
Factsheet
Mythbusters
Case Study
Resources
Voluntary Assisted Dying
Overview
Factsheets
FAQs
Resources
Linkages
Why a Toolkit on Linkages
Plan – Identifying and Preparing
Do – Implementing
Check – Assessing and Revising
Act – Sustaining
References
Dementia
Clinical Care
Advance Care Planning
Recognise End of Life
Assess Palliative Care Needs
Provide Palliative Care
Work Together
Respond to Deterioration
Manage Dying
Bereavement
References
Education and Learning
Your Learning Needs
Online Training
Other Ways to Gain Experience
Resources
Advance Care Planning
Palliative Care
Useful Links
Allied Health
Why an Allied Health Toolkit
End of Life Care in Aged Care
Practising in Aged Care
Allied Health Team
Referral Pathways
Funding Allied Health Services
Supporting older adults with disability funding
Telehealth
Allied Health Regulatory Bodies
Guidance and Research
Discipline specific evidence
Useful Websites
Hot Topics
Hot Topic 1 - EDAR
Hot Topic 2 - VAD
Hot Topic 3
Hot Topic 4
Managing Risk
Principles of Risk Management
Nutrition and Hydration
Overview
Personal Preferences
Ongoing Assessment
Support the Person
The Last Days of Life
Good Communication
Medication Management
Overview
Personal Preferences
Medication Needs, Goals and Preferences
Changes in Symptoms
Managing Pain at End of Life
Good Communication
Transfers
Overview
Personal Preferences
Unintended and Unnecessary Transfers
Planning, Risk Assessment and Communication
Continuity of Care Between Settings
Toolkit Educational Videos
Service Development
Linkages Program
Case Stories
Linkage Strategies
Participating Sites
QLD
NSW
ACT
VIC
TAS
SA
NT
WA
PACE Aged Care App
COVID-19
Clinical Assessment and Practice Tools
ELDAC Education
Podcast series
Our products
Digital Dashboard
Case stories
Getting started with the Digital Dashboard
Dashboard Publication
Our diversity
Aboriginal and Torres Strait Islander Peoples
Care Leavers
Carers
Culturally and Linguistically Diverse
Financially or Socially Disadvantaged
Homeless
Lesbian, Gay, Bisexual, Transgender and Intersex
Rural and Remote
Spirituality and Faith
Veterans
Home Care App
Home care search filter
My Care Matters
ProSeek
Self-care room
Raise your understanding
Grab and grow
Pause and reflect
Time to plan
Cope with death and dying
For organisations
Explore resources
About the Self-Care Room
Talking with families
Join Our Webinars
About us
Our team
Common terms
Abbreviations
Publications and Presentations
News
Blogs
Download resources
Order print resources
GO
|
References
Our Toolkits
>
Dementia
>
Clinical Care
>
References
Primary Care
Clinical Action
Advance Care Planning
Recognise End of Life
Assess Palliative Care Needs
Provide Palliative Care
Understand Your Responsibilities
Manage Symptoms
Serious Complications and Emergencies
Manage Medications
Procedures and Investigations
Diverse Settings
Diverse Population Groups
Syringe Drivers
Information and Resources
Work Together
Respond to Deterioration
Manage Dying
Bereavement
Business and Practice Management
Funding Streams
Medicare Benefits Scheme
General Practice in Aged Care Incentive
MyMedicare
Digital Tools
My Health Record
HealthPathways
ELDAC Digital Dashboard
Older Person, Family and Carer Support
Information and Resources
Feedback Mechanisms
Caring for Diverse Populations
Team Support
Organisational Support
Continuing Professional Development
For Nurses
For GPs
For Practice Managers
Home Care
Clinical Care
Advance Care Planning
Recognise End of Life
Assess Palliative Care Needs
Provide Palliative Care
Work Together
Respond to Deterioration
Manage Dying
Bereavement
References
Education and Learning
Personal Learning Assessment
Online Training
Educator Resources
Other Ways to Gain Experience
Resources
Advance Care Planning
Palliative Care
Self-Care
Bereavement
Useful Links
Organisational Support
Support Systems
Quality Improvement
Standards and Funding
Work Together
Diverse Populations
Supporting Inclusive End of Life Care Companion Guides
Residential Aged Care
Clinical Care
Advance Care Planning
Recognise End of Life
Assess Palliative Care Needs
Provide Palliative Care
Work Together
Respond to Deterioration
Manage Dying
Bereavement
References
Education and Learning
Personal Learning Assessment
Online Training
Educator Resources
Other Ways to Gain Experience
Resources
Advance Care Planning
Palliative Care
Self-Care
Bereavement
Useful Links
Organisational Support
Support Systems
Quality Improvement
Standards and Funding
Work Together
Diverse Populations
Supporting Inclusive End of Life Care Companion Guides
End of Life Law
Overview of End of Life Law in Australia
FAQs
State and Territory End of Life Law
Capacity and Consent to Medical Treatment
Factsheet
Mythbusters
Case Study
Advance Care Directives
Factsheet
Mythbusters
Case Study
Resources
Substitute Decision-Making
Factsheet
Mythbusters
Case Study
Withholding and Withdrawing Life-Sustaining Medical Treatment
Factsheet
Mythbusters
Case Study
Legal Protection for Administering Pain and Symptom Relief
Factsheet
Mythbusters
Case Study
Resources
Futile or Non-Beneficial Treatment
Factsheet
Mythbusters
Case Study
Emergency Medical Treatment
Factsheet
Mythbusters
Case Study
Resources
Managing Disputes about Medical Treatment Decision-Making
Factsheet
Mythbusters
Case Study
Resources
Voluntary Assisted Dying
Overview
Factsheets
FAQs
Resources
Linkages
Why a Toolkit on Linkages
Plan – Identifying and Preparing
Do – Implementing
Check – Assessing and Revising
Act – Sustaining
References
Dementia
Clinical Care
Advance Care Planning
Recognise End of Life
Assess Palliative Care Needs
Provide Palliative Care
Work Together
Respond to Deterioration
Manage Dying
Bereavement
References
Education and Learning
Your Learning Needs
Online Training
Other Ways to Gain Experience
Resources
Advance Care Planning
Palliative Care
Useful Links
Allied Health
Why an Allied Health Toolkit
End of Life Care in Aged Care
Practising in Aged Care
Allied Health Team
Referral Pathways
Funding Allied Health Services
Supporting older adults with disability funding
Telehealth
Allied Health Regulatory Bodies
Guidance and Research
Discipline specific evidence
Useful Websites
Hot Topics
Hot Topic 1 - EDAR
Hot Topic 2 - VAD
Hot Topic 3
Hot Topic 4
Managing Risk
Principles of Risk Management
Nutrition and Hydration
Overview
Personal Preferences
Ongoing Assessment
Support the Person
The Last Days of Life
Good Communication
Medication Management
Overview
Personal Preferences
Medication Needs, Goals and Preferences
Changes in Symptoms
Managing Pain at End of Life
Good Communication
Transfers
Overview
Personal Preferences
Unintended and Unnecessary Transfers
Planning, Risk Assessment and Communication
Continuity of Care Between Settings
Toolkit Educational Videos
Dementia Australia.
About Dementia
[Internet]. 2022 [cited 18 November 2022]
Australian Institute of Health and Welfare (AIHW).
Dementia in Australia Web Report Population Health Impacts of Dementia
[Internet]. Canberra: AIHW, last updated 16 September 2022 [cited 18 November 2022].
van der Steen JT, Radbruch L, Hertogh CMPM, de Boer ME, Hughes JC, Larkin P, Francke AL, Jünger S, Gove D, Firth P, Koopmans RTCM, Volicer L on behalf of the European Association for Palliative Care (EAPC).
White paper defining optimal palliative care in older people with dementia: A Delphi study and recommendations from the European Association for Palliative Care
. Palliative Medicine [Internet]. 2014 [cited 18 November 2022]; 28(3):197-209. DOI:/10.1177/0269216313493685.
Dementia Australia.
Types of Dementia
[Internet]. 2022 [cited 18 November 2022].
Australian Government Department of Health and Ageing.
A National Framework for Advance Care Directives 2011
[Internet]. Canberra: Australian Government Department of Health and Ageing, 2011. [cited 18 November 2022]. Publications Number: P3-4802.
Australian Commission on Safety and Quality in Health Care (ACSQHC).
National Consensus Statement: Essential elements for safe and high-quality end-of-life care
. 2015, P33 [Internet]. Sydney: ACSQHC, 2015. [cited 18 November 2022].
Parker D, Lewis J, Gourlay K.
Palliative Care and Dementia
. 2018 [Internet]. Canberra: Dementia Australia, 2018. [cited 18 November 2022]. Paper Number 43.
Gold Standard Framework (GSF) Centre.
GSF Proactive Identification Guidance (PIG)
. [Internet] 2022 [cited 18 November 2022].
Social Care Institute for Excellence (SCIE).
Dementia: Eating and Drinking at the End of life
[Internet]. 2020 [cited 18 November 2022].
Aged Care Research and Industry Innovation Australia (ARIIA).
Responsive Behaviours
[Internet] 2022 [cited 18 November 2022].
CareSearch.
What is Person-Centred Care
[Internet] 2015 [cited 18 November 2022].
Collaboration between Palliative Care Australia, Alzheimer’s Australia, COTA Australia, Aged & Community Services Australia, Leading Age Services Australia, Catholic Health Australia and the Aged Care Guild.
Principles for Palliative and End-of-Life Care in Residential Aged Care 2017
[Internet] PCA, 2017 [cited 18 November 2022].
Dementia Australia.
Progression of Dementia
[Internet] 2022. [cited 18 November 2022].
Palliative Care Australia.
The National Palliative Care Standards
[Internet]. Sydney: PCA, 2018, 5th edition, Page 36. [cited 18 November 2022].
Royal Australian College of General Practitioners (RACGP).
RACGP Aged Care Clinical Guide (Silver Book): Part A. Dementia
[Internet]. 2019 RACGP, 5th edition. [cited 18 November 2022].
Australian Institute of Health and Welfare (AIHW).
Dementia in Australia Web Report: Community-based Aged Care
[Internet]. Canberra: AIHW, last updated 16 September 2022 [cited 18 November 2022].
Australian Institute of Health and Welfare (AIHW).
Dementia in Australia Web Report: Residential Aged Care
[Internet]. Canberra: AIHW, last updated 16 September 2022 [cited 18 November 2022].
>Australian Institute of Health and Welfare (AIHW).
Dementia in Australia Web Report: How do Care Needs of People with Dementia Differ by Place of Residence?
[Internet]. Canberra: AIHW, last updated 16 September 2022 [cited 18 November 2022].
Royal Australian College of General Practitioners (RACGP).
RACGP Aged Care Clinical Guide (Silver Book): Part A. Palliative and End-of-Life Care
[Internet]. 2019 RACGP, 5th edition. [cited 18 November 2022].
Murray SA, Kendall M, Boyd K, Sheikh A.
Illness Trajectories and Palliative Care. British Medical Journal
[Internet] 2005 [cited 18 November 2022]. 330(7498):1007–1011. DOI: 10.1136/bmj.330.7498.1007.
Eisenman Y, Golla H, Schmidt H, Voltz R, Perrar KM Palliative Care in Advanced Dementia.
Frontiers in Psychiatry
[Internet] 2020 [cited 18 November 2022] 11: Article 699. DOI: 10.3389/fpsyt.2020.00699.
Social Care Institute for Excellence (SCIE).
Dementia: Care in the Last Days of Life with Dementia
[Internet]. 2020 [cited 18 November 2022].
CareSearch.
Bereavement and Grief
[Internet]. 2021 [cited 18 November 2022].
Toye C, Lester L, Popescu A, McInerney F, Andrews S, Robinson, AL.
Dementia Knowledge Assessment Tool Version Two: Development of a tool to inform preparation for care planning and delivery in families and care staff.
Dementia [Internet]. 2014 [cited 21 October 2022]; 13(2): 248-56. DOI: 10.1177/1471301212471960
No authors listed.
Corrigendum
. Dementia [Internet].2016 [cited 21 October 2022]; 15(5):1313.DOI: 10.1177/1471301216665269
Page last updated 12 December 2022